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Johns Hopkins Center for Inherited Heart Diseases

The Johns Hopkins Center for Inherited Heart Diseases strives to identify genetic diseases and slow their progression through preventative care and advanced treatment for patients.

 
 
 

Introducing the CIHD Newsletter

Our goal with this newsletter is to keep you informed about the services we offer, program updates and patient seminars/webinars, as well as information about our research and how you can get involved.

Meet Our Team

Our team of physicians and genetic counselors focus on providing compassionate care for all age groups and their families.

Why Choose Johns Hopkins

Our center provides a family-centered approach with comprehensive treatments for our patients.

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Multidisciplinary Team

Receive testing and treatment in the same day thanks to a comprehensive team of genetic counselors, adult and pediatric cardiologists.

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Advanced Clinical Trials

Access cutting-edge clinical trials and research for a variety of inherited heart diseases.

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Personalized Treatment

Our cutting-edge research has led to the development of personalized medicine using stem cells, helping medications work best for you.

CIHD Research Registry

The Johns Hopkins Center for Inherited Heart Disease is dedicated to advancing cardiovascular genetics research as it relates to the health and care of our patients. The first step in getting involved in our research is joining our research registry: “Genetic Investigation of Inherited Cardiac Conditions”. The purpose of this study is to learn more about the genetic causes of heart conditions. We also study which gene(s) cause patients with inherited heart conditions to vary in symptoms, outcomes, and rates of disease progression.

  • Participation includes giving us permission to review your cardiac medical records.  We may invite you to submit a DNA sample. If we do, we will send you a DNA collection kit by mail or collect a sample in clinic. There is no financial compensation for joining the study. 

    When you join we will also ask you if you are interested in being invited to join other studies specific to your condition or genes in the future.

  • Adults and children with an inherited heart condition and their family members.

  • To learn more, please contact us at [email protected] or 410-502-2578.

    Principal Investigator: Dr. Cindy James, PhD, CGC
    Genetic Investigation of Inherited Cardiac Conditions 
    Study number: NA_00001192

 

Physician Referrals

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Refer a patient for genetic counseling or cardiac care.

 
 
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